View Full Version : We got the call for Holly!
Xplantdad
12-22-2016, 11:48 AM
Well, we got the call that we've been waiting for-for almost 4 years! We got a kidney offer for Holly this morning at 4 am.
We have decided to accept the offer-and we will put Holly on dialysis this morning as instructed by the staff at Mayo-then, go the hospital in anticipation of the kidney arriving. We should be at the hospital by 9:30am. Once the kidney arrives-the folks at Mayo will check it out thoroughly and if everything is good to go with both Holly and the kidney-the transplant should happen around noon.
We ask that you please pray for the donor, for Holly's upcoming surgery and a good outcome after surgery
http://www.yenko.net/ubbthreads/pics/usergals/2016/12/full-1805-54807-dscf0854.jpg
Dave Rifkin
12-22-2016, 11:51 AM
What a wonderful Christmas present; congratulations and I hope and pray that everything goes off without a hitch.
chevyman0429
12-22-2016, 12:03 PM
That's a fantastic Christmas present prayers will be sent for Holly and the family. Make sure to keep us posted.
njsteve
12-22-2016, 12:14 PM
Excellent news! <<GRAEMLIN_URL>>/biggthumpup.gif
iluv69s
12-22-2016, 12:15 PM
Great news !! Prayers from here !!
Xplantdad
12-22-2016, 12:17 PM
Thanks all. We are on dialysis at home now...and will be done in about 2.5 hours.
We are all nervous...but know we have the best of the best to guide us through all of this. I ask again that those who pray-please pray for the donor and the donor family-as they gave the ultimate gift...the gift of life. <<GRAEMLIN_URL>>/youguysrock.gif
azcamaros
12-22-2016, 12:25 PM
Great news! My thoughts and prayers with Holly and your family.
cook_dw
12-22-2016, 12:27 PM
Very cool.. Praying everything goes well..
PeteLeathersac
12-22-2016, 12:39 PM
'
Amazing news, prayers sent plus more to come for Holly and the Donor also both your families!
God's blessings and guiding hand to the surgeons also everyone involved w/ this most beautiful Christmas gift!
<<GRAEMLIN_URL>>/worship.gif
~ Pete
earntaz
12-22-2016, 12:43 PM
WOW!!!!!!!!!!!!!!!! Go for it Holly -- our prayers are with you ... Anna & Craig <<GRAEMLIN_URL>>/youguysrock.gif <<GRAEMLIN_URL>>/HollyRocks.gif <<GRAEMLIN_URL>>/BruceRocks.gif <<GRAEMLIN_URL>>/santa.gif <<GRAEMLIN_URL>>/smile.gif
bbbentley
12-22-2016, 12:47 PM
<div class="ubbcode-block"><div class="ubbcode-header">Originally Posted By: PeteLeathersac</div><div class="ubbcode-body">'
Amazing news, prayers sent plus more to come for Holly and the Donor also both your families!
God's blessings and guiding hand to the surgeons also everyone involved w/ this most beautiful Christmas gift!
<<GRAEMLIN_URL>>/worship.gif
~ Pete
</div></div>
Ditto cause I can't say it any better- Merry Christmas...indeed!
67 Nova Boy
12-22-2016, 01:02 PM
That is wonderful news...here is many hugs going your way for all!
Dave
67 Nova Boy
So glad for for your family Bruce.
In our thougts and prayers.
mockingbird812
12-22-2016, 01:15 PM
Wonderful - WONDERFUL!!! <span style="font-size: 26pt"><span style="font-style: italic"><span style="font-weight: bold">Go get 'me Holly!!!!</span></span></span> <<GRAEMLIN_URL>>/biggthumpup.gif
Verne_Frantz
12-22-2016, 01:56 PM
Such great news Bruce.! I was always hoping to hear something like this. I'm confident that with the best team you have there that everything will work out perfectly.
Verne
Bill Pritchard
12-22-2016, 01:57 PM
Wonderful news, Bruce.....saying a prayer for all involved. Merry Christmas!
m22mike
12-22-2016, 02:06 PM
Take care and hope all goes well today, and Bruch tell Holly I will see her at the Pavilions in January. <<GRAEMLIN_URL>>/HollyRocks.gif
x77-69z28
12-22-2016, 02:12 PM
Has there ever been a better Christmas present than this? I don't think so! I can't imagine how this feels for you guys! Give Holly a big kiss for me. I am praying til I hear back from you!
Buddy <<GRAEMLIN_URL>>/HollyRocks.gif
SuperNovaSS
12-22-2016, 02:16 PM
We are praying for you guys.
Jason
Charley Lillard
12-22-2016, 02:23 PM
Wow....Merry Christmas you guys. We are all here sending our best success wishes...
tom406
12-22-2016, 02:43 PM
Merry Christmas and absolute best wishes to everyone involved.
Xplantdad
12-22-2016, 03:17 PM
Thanks...we're off to the hospital now. We will update when we can <<GRAEMLIN_URL>>/beers.gif <<GRAEMLIN_URL>>/youguysrock.gif
70 Forest Green Zee
12-22-2016, 03:26 PM
Great news Bruce....good things happen to good people! You and your family will be in my thoughts this holiday season!
Craig_Maiorana
12-22-2016, 03:39 PM
Just in time for Christmas .. Best wishes guys
scuncio
12-22-2016, 04:13 PM
That's great news, great Christmas present!
68l30
12-22-2016, 04:30 PM
Prayers and strength headed your way Holly... <<GRAEMLIN_URL>>/biggthumpup.gif
In this season of giving...God Bless the Donor and their family. There is no greater gift <<GRAEMLIN_URL>>/worship.gif
BIG
danachevroletfor1967
12-22-2016, 04:59 PM
Prayers said and good thoughts for Holly and her family and for the donor family too. What a great happening at this special time of the year.
earntaz
12-22-2016, 05:02 PM
Bruce and family -- Psalm 91 ... Anna & Craig <<GRAEMLIN_URL>>/smile.gif
CC Rider
12-22-2016, 06:13 PM
I am also here at Mayo. My wife has a scheduled procedure today. I've seen the Blythes twice and things are going well. As of now, Holly is in pre-op.
Hope it was OK to share this. <<GRAEMLIN_URL>>/HollyRocks.gif
Tenney
12-22-2016, 06:20 PM
<<GRAEMLIN_URL>>/HollyRocks.gif
Ryan1969Chevelle
12-22-2016, 06:41 PM
Prayer sent!!
You guys deserve this positive step!!!
Ryan
CC Rider
12-22-2016, 06:45 PM
She is in surgery. <<GRAEMLIN_URL>>/HollyRocks.gif
Xplantdad
12-22-2016, 07:11 PM
<div class="ubbcode-block"><div class="ubbcode-header">Originally Posted By: 69SUPERSPORT396</div><div class="ubbcode-body">She is in surgery. <<GRAEMLIN_URL>>/HollyRocks.gif </div></div>
Rick is correct! It's a go...and a perfect match. We met with the surgeon briefly. Holly is in surgery now <<GRAEMLIN_URL>>/smile.gif
Damien
12-22-2016, 07:16 PM
Fantastic news Bruce! Our best to Holly and you guys, what a great Xmas present. <<GRAEMLIN_URL>>/biggthumpup.gif <<GRAEMLIN_URL>>/HollyRocks.gif <<GRAEMLIN_URL>>/BruceRocks.gif
MosportGreen66
12-22-2016, 07:18 PM
<div class="ubbcode-block"><div class="ubbcode-header">Originally Posted By: Xplantdad</div><div class="ubbcode-body"><div class="ubbcode-block"><div class="ubbcode-header">Originally Posted By: 69SUPERSPORT396</div><div class="ubbcode-body">She is in surgery. <<GRAEMLIN_URL>>/HollyRocks.gif </div></div>
Rick is correct! It's a go...and a perfect match. We met with the surgeon briefly. Holly is in surgery now <<GRAEMLIN_URL>>/smile.gif </div></div>
Wow did this move fast from this morning's texts, Bruce! Thinking of Holly!
Dan
earntaz
12-22-2016, 07:22 PM
<div class="ubbcode-block"><div class="ubbcode-header">Originally Posted By: 69SUPERSPORT396</div><div class="ubbcode-body">I am also here at Mayo. My wife has a scheduled procedure today. I've seen the Blythes twice and things are going well. As of now, Holly is in pre-op.
Hope it was OK to share this. <<GRAEMLIN_URL>>/HollyRocks.gif </div></div>
Same to you Rick -- we're praying !! Craig
1969grb
12-22-2016, 07:30 PM
Best wishes to all of you! What a great Christmas gift.
Grady
Xplantdad
12-22-2016, 07:31 PM
<div class="ubbcode-block"><div class="ubbcode-header">Originally Posted By: MosportGreen66</div><div class="ubbcode-body"><div class="ubbcode-block"><div class="ubbcode-header">Originally Posted By: Xplantdad</div><div class="ubbcode-body"><div class="ubbcode-block"><div class="ubbcode-header">Originally Posted By: 69SUPERSPORT396</div><div class="ubbcode-body">She is in surgery. <<GRAEMLIN_URL>>/HollyRocks.gif </div></div>
Rick is correct! It's a go...and a perfect match. We met with the surgeon briefly. Holly is in surgery now <<GRAEMLIN_URL>>/smile.gif </div></div>
Wow did this move fast from this morning's texts, Bruce! Thinking of Holly!
Dan </div></div>
Yes it did...and thanks for the texts. Claire, Rick's wife is doing well, too <<GRAEMLIN_URL>>/smile.gif
Xplantdad
12-22-2016, 09:04 PM
Transplant is done and she's in recovery. The transplanted kidney has already made a bit of urine <<GRAEMLIN_URL>>/smile.gif . Thank you everyone for your prayers and positive thoughts
Ryan1969Chevelle
12-22-2016, 09:18 PM
Wow, that is such a good sign so quickly:-)
Prayers continue!!!!
Ryan
BJCHEV396
12-22-2016, 09:51 PM
Great news!!
earntaz
12-22-2016, 10:44 PM
Glad to her that!! Anna & Craig <<GRAEMLIN_URL>>/HollyRocks.gif
TOM K
12-22-2016, 11:12 PM
Great News!!!!!!
napa68
12-22-2016, 11:22 PM
Our prayers and thoughts.
Merry Christmas!
Tim & Tracey
leach
12-22-2016, 11:45 PM
Fantastic Christmas present will pray that all goes well.
m22mike
12-23-2016, 12:35 AM
God bless you guys. Awesome news.
Mike
ZAPPER68
12-23-2016, 12:55 AM
Fantastic...what great news!
Whoever the donor is has provided Holly with a very special Christmas gift. God bless them and Holly for their strength and courage.
KenMaisano
12-23-2016, 03:17 AM
Amazing news!!!!!!!!!!!!!!!! Thank God!!!!!!!!!!!!!!
Mr. Chevy
12-23-2016, 03:25 AM
Great news Bruce!!
Rich
bilede
12-23-2016, 03:35 AM
Wow, just heard the news and our prayers are with everyone involved.
Plowman
12-23-2016, 03:47 AM
Great news and are prayers are with you too.
David Billingsley
12-23-2016, 04:31 AM
Prayers sent
mssl72
12-23-2016, 06:56 AM
Prayers goin' out!!
bergy
12-23-2016, 09:21 AM
Terrific! Praying for a speedy recovery.
parkbrau
12-23-2016, 09:39 AM
Awesome sauce! what a great x-mas gift.
Wonderful, sending good thoughts and prayers <<GRAEMLIN_URL>>/smile.gif
chevyandpontiac
12-23-2016, 11:13 AM
Our prayer are with you guys. Now for a speedy recovery, and a Merry Christmas.
Wow, what great news Bruce. All our best to Holly and your family.
Phil W.
earntaz
12-23-2016, 12:36 PM
Hope this AM finds all is well -- TAZ <<GRAEMLIN_URL>>/youguysrock.gif
XXXGoldL34M20
12-23-2016, 12:41 PM
All the best to Holly and your Family <<GRAEMLIN_URL>>/biggthumpup.gif
69 Post Sedan
12-23-2016, 01:22 PM
I just seen this thread.......what an awesome day for all of you. Hope Holly has a speedy recovery!!!!!!!
Kurt
olredalert
12-23-2016, 01:48 PM
----Have been out of touch. Such good news!!!
----Should have added one of my standard thoughts, "Good things happen to good people".....Bill S
WILMASBOYL78
12-23-2016, 01:49 PM
<span style="font-size: 11pt">Yes Holly...there is a Santa Claus <<GRAEMLIN_URL>>/santa.gif
God speed and best wishes to everyone involved with this miracle <<GRAEMLIN_URL>>/beers.gif
-wilma </span>
flyingn
12-23-2016, 02:10 PM
Wonderful news! God Bless you guys and speedy recovery, Holly! Much love!
flyingn
12-23-2016, 02:11 PM
<div class="ubbcode-block"><div class="ubbcode-header">Originally Posted By: Xplantdad</div><div class="ubbcode-body">Transplant is done and she's in recovery. The transplanted kidney has already made a bit of urine <<GRAEMLIN_URL>>/smile.gif . Thank you everyone for your prayers and positive thoughts </div></div>
Awesome news Bruce!!!!
A12pilot
12-23-2016, 03:01 PM
That is just awesome news! Thoughts your way!
Cheers
Dave
juliosz
12-23-2016, 09:35 PM
Great news, our prayers to you and your family Bruce.
Paul
budnate
12-23-2016, 10:38 PM
fantastic News Bruce! give the kid a scratch on the head for me, Merry Christmas!
Xplantdad
12-23-2016, 10:50 PM
Update part 1:
Here's the update for holiday after transplant still waiting for the kidney to output urine. But that's to be expected on kidneys that have been out of the body for awhile. They will probably do dialysis today to help her clear the toxins from her body. We will be moving out of the critical room to the regular care room. Doctor's rounds will happen here in a bit. As if on cue, Holly's long term nephrologist, Dr. Thomas came by and visited, too. We thanked him for his outstanding care...as we will now transition to the Kidney transplant team docs.
Merry Christmas everyone!
And part two:
Update for the afternoon. Holly is in dialysis now. They are not pulling off any fluid...just filtering the blood. Transplant surgeon came in and thinks everything looks good. Transplant follow up team and doc think everything looks great, too. Word is that we may be home for Christmas eve! We have 70 plus appointments so far...and dialysis starts (for the short term) on Monday evening.Cardiac team still has to visit today!
http://www.yenko.net/ubbthreads/pics/usergals/2016/12/full-1805-54862-1482536865433444982942.jpg
Xplantdad
12-23-2016, 10:51 PM
Cannot rotate from the phone sorry <<GRAEMLIN_URL>>/smile.gif <<GRAEMLIN_URL>>/youguysrock.gif
Tommy Nolen
12-23-2016, 11:04 PM
Praise the Lord !!
earntaz
12-23-2016, 11:49 PM
<div class="ubbcode-block"><div class="ubbcode-header">Originally Posted By: Xplantdad</div><div class="ubbcode-body">Cannot rotate from the phone sorry <<GRAEMLIN_URL>>/smile.gif <<GRAEMLIN_URL>>/youguysrock.gif </div></div>
Don't fret the small stuff Bruce -- we'll take it standing on our heads if need be ... Anna and Craig (TAZ) <<GRAEMLIN_URL>>/youguysrock.gif <<GRAEMLIN_URL>>/biggthumpup.gif <<GRAEMLIN_URL>>/santa.gif
Glad to hear Holly is doing well. God bless and Merry Christmas to you and your family.
Xplantdad
12-24-2016, 01:44 AM
<div class="ubbcode-block"><div class="ubbcode-header">Originally Posted By: earntaz</div><div class="ubbcode-body"><div class="ubbcode-block"><div class="ubbcode-header">Originally Posted By: Xplantdad</div><div class="ubbcode-body">Cannot rotate from the phone sorry <<GRAEMLIN_URL>>/smile.gif <<GRAEMLIN_URL>>/youguysrock.gif </div></div>
Don't fret the small stuff Bruce -- we'll take it standing on our heads if need be ... Anna and Craig (TAZ) <<GRAEMLIN_URL>>/youguysrock.gif <<GRAEMLIN_URL>>/biggthumpup.gif <<GRAEMLIN_URL>>/santa.gif </div></div>
Home for a bit....
This should work better!
http://www.yenko.net/ubbthreads/pics/usergals/2016/12/full-1805-54869-transplantdayafter.jpg
earntaz
12-24-2016, 01:58 AM
Excellent color and an even better smile!!! <<GRAEMLIN_URL>>/HollyRocks.gif
StriperSS
12-24-2016, 03:04 AM
I've been on this site for quite a few years and don't post too often, but have been following Hollys story. She's been through a lot, but it seems things are looking up for her. I hope she has a speedy recovery. <<GRAEMLIN_URL>>/smile.gif
Canuck
12-24-2016, 05:43 AM
She looks good!
Merry Christmas!
Paul
JBALL
12-24-2016, 10:37 AM
Congrats Bruce. Merry Christmas.
NorCam
12-24-2016, 12:31 PM
That is great news.
Continued well wishes and prayers for you all, and a very Merry Christmas to you and your family.
427425
12-24-2016, 02:34 PM
Fantastic news , Bruce, give Holly a big hug for me and hope you Lynn and Holly have a wonderful Christmas at home.She looks great, can't wait to see you all at the Pavilions. Praying for a speedy recovery.
enio45
12-24-2016, 08:24 PM
Bruce - congrats on the transplant and success.....hope all continues and you all have a Merry Xmas.....
resto4u
12-24-2016, 08:45 PM
miracle girl, she always has a smile. Hope you have a speedy recovery! <<GRAEMLIN_URL>>/HollyRocks.gif
Xplantdad
12-24-2016, 08:48 PM
Hi all...we are home...sweet home! Lots of doctor appointments over the next few months...more than a hundred at the latest count <<GRAEMLIN_URL>>/smile.gif
As we were leaving the hospital, we ran into a delivery person bringing Holly a beautiful bouquet...and a teddy bear...from "Yenko.net"
Holly says <<GRAEMLIN_URL>>/youguysrock.gif and Thank you to Charley!
http://www.yenko.net/ubbthreads/pics/usergals/2016/12/full-1805-54885-hollyhome.jpg
earntaz
12-24-2016, 08:50 PM
Aaahhh -- home sweet home ... nothing like being there!! You go girl!!! TAZ
Charley Lillard
12-24-2016, 08:57 PM
But what did the card say ?
galveston
12-24-2016, 09:41 PM
Hoping for a speedy recovery Holly! <<GRAEMLIN_URL>>/HollyRocks.gif
Bill Pritchard
12-24-2016, 11:51 PM
Home for Christmas....outstanding!!!
ORIGLS6
12-25-2016, 12:46 AM
What an amazing Christmas Gift !
SS427
12-25-2016, 12:49 AM
Time to change your sign-on Bruce to.......... <span style="font-weight: bold">2Xplantdad</span> <<GRAEMLIN_URL>>/HollyRocks.gif
SuperNovaSS
12-25-2016, 01:48 AM
Welcome home Holly!
Merry Christmas,
Jason
Xplantdad
12-25-2016, 02:43 AM
<div class="ubbcode-block"><div class="ubbcode-header">Originally Posted By: Charley Lillard</div><div class="ubbcode-body">But what did the card say ? </div></div>
It said Seahawks suck...LOL
Holly wanted to know how your "Noners" are doing this year! <<GRAEMLIN_URL>>/hmmm.gif <<GRAEMLIN_URL>>/haha.gif <<GRAEMLIN_URL>>/beers.gif
Charley Lillard
12-25-2016, 02:47 AM
Wanna buy a field goal kicker ?
Xplantdad
12-25-2016, 02:51 AM
LOL...Holly says she thanks you for the flowers and the bear...it's with her in the bed now..!
Well it's a wonderful birthday present for me to hear this news!!!
Merry Christmas !!!
Xplantdad
12-25-2016, 12:00 PM
Happy birthday Scott!
napa68
12-25-2016, 12:09 PM
Congratulations and a VERY Merry Christmas!
Ryan1969Chevelle
12-25-2016, 12:11 PM
Good news all around, Holly doing well:-)
Prayers for a speedy recovery.
Ryan
HaPPy BirTHdAy Scott:-) You should update your profile and add personal info like BirTHday and credit card information:-)
bkhpah
12-25-2016, 12:16 PM
Great news Holly! Get well soon..BKH
earntaz
12-25-2016, 12:16 PM
<div class="ubbcode-block"><div class="ubbcode-header">Originally Posted By: Xplantdad</div><div class="ubbcode-body"><div class="ubbcode-block"><div class="ubbcode-header">Originally Posted By: Charley Lillard</div><div class="ubbcode-body">But what did the card say ? </div></div>
It said Seahawks suck...LOL
Holly wanted to know how your "Noners" are doing this year! <<GRAEMLIN_URL>>/hmmm.gif <<GRAEMLIN_URL>>/haha.gif <<GRAEMLIN_URL>>/beers.gif </div></div>
Go Pack!! <<GRAEMLIN_URL>>/beers.gif
Xplantdad
12-25-2016, 12:23 PM
And this wonderful Christmas morning...we are off to Mayo for an IV and blood tests (routine stuff), then we will come home and celebrate the best Christmas present ever.
We ask...that if you pray, please pray for the donor and the donor family....Oh, and <<GRAEMLIN_URL>>/youguysrock.gif and <<GRAEMLIN_URL>>/HollyRocks.gif
Postsedan
12-25-2016, 12:35 PM
Wow! I just woke up.....Christmas Day and reading this thread for the first time. What a wonderful gift, so wonderful. Holly looks great.....continued success and prayers are being sent for Holly and the donor family <<GRAEMLIN_URL>>/HollyRocks.gif <<GRAEMLIN_URL>>/HollyRocks.gif <<GRAEMLIN_URL>>/HollyRocks.gif
This has been the best Christmas Present to us all.
Dan
Enoch
12-25-2016, 01:48 PM
Praying for the donor and family and also for you giys.
carnut4life
12-25-2016, 02:04 PM
Congratulations for the greatest gift of all Bruce! God bless you all <<GRAEMLIN_URL>>/HollyRocks.gif <<GRAEMLIN_URL>>/BruceRocks.gif
bbbenny
12-25-2016, 02:43 PM
What a Great gift. For both sides. Talk about something beinging PRICELESS! Merry Christmas to Holly and Bruce. <<GRAEMLIN_URL>>/HollyRocks.gif
Tenney
12-25-2016, 04:31 PM
Your family does cool stuff, Bruce - Merry Christmas!! <<GRAEMLIN_URL>>/santa.gif
Dicky
12-25-2016, 04:48 PM
Bless all of you, the donor and Holly. Merry Christmas from myself and my wife Julia.
Godspeed to all. <<GRAEMLIN_URL>>/biggthumpup.gif
With so much bad news in the world, it is wonderful to read about something good. Merry Christmas.
Xplantdad
12-25-2016, 08:03 PM
Merry Christmas all! We've invited Rick Eckenrode and his family over for Christmas...We were going to cook...but now we're gonna order out! <<GRAEMLIN_URL>>/wink.gif
Everything at Mayo went fine today...so we have no doctor's visits until Tuesday ! <<GRAEMLIN_URL>>/youguysrock.gif
SuperNovaSS
12-25-2016, 08:10 PM
I think you guys deserve to order out. Enjoy the holiday.
Merry Christmas,
Jason
Xplantdad
12-25-2016, 08:16 PM
Thanks Jason...I just thought I would post some more of the info about Holly's journey up to this point...for those who don't already know...or would like to read it. <<GRAEMLIN_URL>>/beers.gif
<div class="ubbcode-block"><div class="ubbcode-header">Quote:</div><div class="ubbcode-body">I will tell you a little a bit about my daughter, Holly.
First of all I am my daughters caregiver-along with my wife.
My daughter was diagnosed with a myocardio fibroma tumor at the age of 2 1/2 months of age in 1990-when she presented with flu like symptoms (slight fever, nausea, etc). Once we got to the pediatrician, they hooked her up to a pulse oxymeter and her saturation levels stunk and her heart rate was near 300 beats per minute. She was throwing SVT's (Supraventricular tachycardia) and the pediatrician didn't know why-so off to the Children's Hospital of Orange County we went.
After we got there, they told us that they'd be able to slow the heart rate with a "brand new" miracle drug called adenosine. Unfortunately, that didn't work and then they proceeded to cardiovert her 17 times to try and stop the heart...so they could start it again. Unfortunately that didn't work either-so after 19 grueling hours, they opted to use digoxin as a last hope. That worked to bring the heart rate down. It eventually spiked a few more times until they dialed in a dose that kept her SVT's under control. They ended up giving her digoxin for the atrial fibrillations and dilantin for the ventricular fibrillation (lucky there weren't may of those while in the hospital).
After she stabilized enough, they performed open chest surgery and discovered the myocardial fibroma tumor. They originally were going to perform the surgery through her back side, but at the last minute, they decided to do it through the front. That was a good call as she flat lined on the table five or six times, until the surgeon actually froze the heart muscle temporarily so he could explore what what going on with the newly discovered tumor. What they found out was that the tumor already covered more than 80 percent of her heart-so surgery to repair wasn't an option. So, they sewed her up and sent her to recovery, where we were told she wouldn't survive. We were able to get our priest that had baptized her to come and give her last rites and we were able to say our goodbyes and went to the waiting room to wait for the word that she had passed.
What happened next was unbelievable-her status did a 180 in the hour after we saw her and the doctors allowed her back up to the ICU-where she maintained critical bodily function levels-not getting much better-but also not much worse either. We went and met with the doctors at Loma Linda Hospital. The doctors there were doing experimental heart transplant surgery-but we heard that they were getting close to approving the surgery as a normal procedure that would be covered by insurance. We decided that this was the only route that we could take and give Holly any chance at survival. She was put on the national transplant list at the beginning of August of 1990.
Eventually, after 2 weeks we we allowed to go home from the Children's Hospital in mid August 1990 after learning pediatric CPR and also with a pediatric apnea/heart monitor on at all times. Mid October 1990, Holly had multiple myocardial infarction's (heart attacks) at home. I was at work and my wife called the paramedics, then called me. I arrived home about the time they scooped her up to take her back to the Children's Hospital. They did their best with the CPR, but when Holly got to the hospital, she was flat lined-again. They worked for 35 minutes to establish a normal heart rhythm then came out and told us that it might be wise to get her priest (and family) to the hospital-as it didn't look good. Again, the father who had baptized her and previously given her last rites-gave her last rites again. Again, we went to the waiting room to wait for word that she had passed away.
From what we were told, the docs refused to give up and finally after 45 minutes-they established a normal heart rhythm. This came at a slight cost-as she experienced hypoxic seizuring-due to lack of oxygen to the brain. She seized so much that they eventually put her into a Phenobarbital coma to stop the swelling on her brain. Thus, we entered into the next stage of her medical issues.
Once the brain swelling went down, they took her off of the Phenobarbital-but she didn't wake up. They chief of staff of the Neurology department did EEG scans and extensive testing of the brain and she only had basal brain functions-no upper level brain functions were present. We were taken off of the national transplant list. We were moved from the ICU to a normal floor and had the discussion with Holly's pediatrician about what was going to happen. Holly at this time was stable enough to go home in the coma, but not medically viable for a transplant. So, we would go home and wait for her to die-then we'd call the pediatrician-and he'd take care of all the particulars (coroner, etc.)
Once again, Holly surprised all of us. The day she was supposed to be discharged to go home-we were watching TV in the hospital room that we were sharing with a hydro-cephalic child and heard a screech that started all of us. It was Holly and she had her eyes open and was looking around. I ran and got the charge nurse-who promptly called the Chief of Staff of the neurology department-who did a bunch of testing and he confirmed that Holly was "Back" with normal brain function. She was immediately put back on the national transplant list-and was moved back upstairs to the ICU for monitoring of the heart rhythms.
We had slept at the hospital continuously for most of the time she was in the hospital. The charge nurse convinced us to spend a day at home and that Holly had the best care-so for the first time, my wife and I went home to sleep for the night. At 5 am the next morning, we got a page on our pager that they had located a heart for Holly! She was life flighted to Loma Linda Hospital for the surgery. There were issues right before transplant there-but I won't get into those here...Holly had a successful heart transplant on November 15th 1990- (just a few days after the procedure went from an experimental procedure to a standard procedure covered by insurance).
Fast forward to 2012-and the toll of taking the immunosupressant medications was starting to become apparent in Holly kidney function. Her kidney function was starting to decrease pretty steadily-and her nephrologist held out as long as he could before putting her on the transplant list for a kidney in 2013. He was able to control kidney function with a series of 13 pills and keep her off of dialysis until January of 2015. At that point, it was decided to put her on peritoneal dialysis-as she had the least chance of infection going this route. She had the surgery at the beginning of February 2015 for the PD cath-and they gave her 1 month to have that heal (due to the immonsuppreasants and reduced immune system response). The days preceding the start of her PD dialysis-she was feeling miserable and could barely walk. We were told by the on call doc that as soon as she started the PD-she'd feel better.
What ended up happening was that we went for the first dialysis session-I literally had to carry Holly into the center. Once the nurse say her-we were sent to Mayo Hospital emergency room where there put a central venous catheter in and put her into ICU-as she was extremely septic. They did dialysis 3 times before she stabilized and was moved into a non ICU room and we were able to go home. We started hemodialysis at DSI in Phoenix in March of 2015 and got so frustrated with them that we went to Fresenius in May of 2015.
Our kidney doc thought we'd be great candidates for home hemo-so we started training in mid-January of 2015. By the beginning of February on 2016 we were released to do home hemo with the NXStage system. </div></div>
.... Wow, This is better then any Christmas movie <<GRAEMLIN_URL>>/HollyRocks.gif
... Praying for a speedy recovery for all involved.
<<GRAEMLIN_URL>>/santa.gif <<GRAEMLIN_URL>>/santa.gif <<GRAEMLIN_URL>>/santa.gif
supernovass would like to talk to you about a carb my number
is 610 333 3121 mike i also sent you a pm im looking for 702 8213 carb
or anyone else
L78 Fred
12-27-2016, 01:15 AM
Bruce- what an incredible story of faith and fortitude.
My thoughts and prayers are with Holly, your family and the Donor's Family - That a least a part of their child could provide life and comfort to your daughter and live on.
Please continue to keep us updated on Holly's journey back.
All the best positive thoughts and continued prayers in the New Year.
Regards,
Fred Schempp
x77-69z28
12-27-2016, 03:27 AM
Reading the history again makes this story even more unbelievable! That girl is destined for great things, GREAT things I tell ya! I can't wait to show her around the Big Apple!
Buddy
Xplantdad
12-27-2016, 03:53 PM
She's really looking forward to the trip to NYC <<GRAEMLIN_URL>>/smile.gif . We're at our first clinic visit today. <<GRAEMLIN_URL>>/smile.gif
BJCHEV396
12-27-2016, 07:13 PM
A very brave and strong young lady.All the best to you Holly!
earntaz
12-30-2016, 05:18 PM
Bruce -- how is Holly doing? Craig <<GRAEMLIN_URL>>/HollyRocks.gif
Xplantdad
01-06-2017, 02:18 AM
Hi Craig and everyone...
Here's the update for Holly. Kidney function is continually improving. She's doing number one...quite a bit...and is above the daily average.
She got the CVC (Central venous catheter) taken out today. The CVC was used as the hook up for dialysis both at home and at the dialysis center...which means....NO MORE DIALYSIS!
All of her blood tests are trending in the right direction...and where they expect Holly to be. Next step is staples removed next Tuesday and stent removed next Wednesday (Oh, and a million blood tests...LOL).
<<GRAEMLIN_URL>>/youguysrock.gif
m22mike
01-06-2017, 02:25 AM
Great to here Bruce, thanks for the update.... <<GRAEMLIN_URL>>/HollyRocks.gif
Mike
earntaz
01-06-2017, 02:27 AM
Awesome! Can't wait to meet you guys ... Craig
PeteLeathersac
01-06-2017, 03:16 AM
'
Awesome updates Bruce, more prayers sent!
<<GRAEMLIN_URL>>/HollyRocks.gif
~ Pete
1969grb
01-06-2017, 04:38 AM
Happy to hear the great news!
Grady
x77-69z28
01-06-2017, 05:00 AM
HAPPY NEW YEAR!!!! What great news Bruce! Can't wipe this smile off my face!!! <<GRAEMLIN_URL>>/HollyRocks.gif <<GRAEMLIN_URL>>/laugh.gif
mssl72
01-06-2017, 06:21 AM
That's really great news! I'm glad things are moving along in the right direction. All the best!
bergy
01-06-2017, 10:06 AM
Wonderful news - keep praying for Holly!
Ryan1969Chevelle
01-06-2017, 12:34 PM
Such positive, progress, :-)
Ryan
napa68
01-06-2017, 12:59 PM
Now that's..........................A HAPPY NEW YEAR!
markinnaples
01-06-2017, 02:26 PM
Great news. God Bless her Bruce.
Steve Shauger
01-06-2017, 03:02 PM
This is just fabulous news. Bruce I couldn't be happier for Holly... <<GRAEMLIN_URL>>/beers.gif
Canuck
01-06-2017, 03:54 PM
Bruce
Each posting on Facebook after the transplant, i couldn't help but think how well she looked. I knew there would be a positive outcome.
A friend had his transplant about 4 years ago, doing well and so will Holly.
Paul
SuperNovaSS
01-06-2017, 04:30 PM
Awesome news!
Jason
Xplantdad
01-06-2017, 06:15 PM
<<GRAEMLIN_URL>>/youguysrock.gif is all that needs to be said.... <<GRAEMLIN_URL>>/beers.gif
Xplantdad
03-01-2017, 01:13 AM
I figured that I would give an update on Holly...as we are just past two months out from her transplant. Thing are going awesome for Holly and "Alejandro" (She named her kidney Alejandro <<GRAEMLIN_URL>>/smile.gif ). Holly's creatinine is 1.2 (sometimes 1.1), she's on a low dose of immunosuppressants (the dose it actually lower than when she was on them just for the heart transplant!), all of the other markers and levels that they are measuring are well within spec, too!
She's gone from 80.2KG (right after transplant) to 71.1KG now. Her dry weight when she started dialysis was 69.6 (I think?) so she's almost back to that weight, too.
We pray nightly for the person who donated the kidney.
Postsedan
03-01-2017, 01:21 AM
THE BEST NEWS <<GRAEMLIN_URL>>/HollyRocks.gif
Dan
WILMASBOYL78
03-01-2017, 01:22 AM
<span style="font-size: 11pt">Happy Days </span><<GRAEMLIN_URL>>/biggthumpup.gif
earntaz
03-01-2017, 02:26 AM
Bruce and family -- our Lord shines on Holly!! Craig <<GRAEMLIN_URL>>/youguysrock.gif
Bruce,
.... That is great news <<GRAEMLIN_URL>>/biggthumpup.gif
<<GRAEMLIN_URL>>/HollyRocks.gif
bbbenny
03-01-2017, 10:59 AM
You, guys are awesome!BBBenny <<GRAEMLIN_URL>>/HollyRocks.gif
RPOLS3
03-01-2017, 11:32 AM
Great news! <<GRAEMLIN_URL>>/HollyRocks.gif
Tenney
03-01-2017, 11:40 AM
<<GRAEMLIN_URL>>/HollyRocks.gif
70 Forest Green Zee
03-01-2017, 12:29 PM
<<GRAEMLIN_URL>>/biggthumpup.gif <<GRAEMLIN_URL>>/BruceRocks.gif <<GRAEMLIN_URL>>/HollyRocks.gif <<GRAEMLIN_URL>>/biggthumpup.gif
SS427
03-01-2017, 12:52 PM
Keep up the great work Holly. You have surpassed so many challenges that we cannot even keep track of. Remarkable woman.
MosportGreen66
03-01-2017, 01:03 PM
Amazing young woman you have there Bruce and what exemplary parents you and Lynn have been!
Dan
markinnaples
03-01-2017, 01:23 PM
Great news, and May Jesus Bless Holly with continued health as well as Blessing the original donor.
Xplantdad
03-02-2017, 12:08 AM
Holly says thanks to everyone...and that <<GRAEMLIN_URL>>/youguysrock.gif
L78 Fred
03-02-2017, 01:09 AM
Its nice to hear good news once in awhile!
Godspeed on her recovery and the best to you and your family!
And God bless the donor and family
Fred
enio45
03-02-2017, 02:32 AM
Bruce, thank you for the update on Holly - pretty amazing road she and the family has traveled.....god bless to all of you!
Zedder
03-02-2017, 02:54 AM
Awesome news! Saying a prayer for her speedy recovery...
scuncio
03-02-2017, 03:03 AM
That is wonderful news Bruce.
PeteLeathersac
03-02-2017, 03:16 AM
'
Awesome update Bruce, prayer is a powerful thing!
Gotta say, Holly's life experiences have helped me think clearly about organ donation.
<<GRAEMLIN_URL>>/HollyRocks.gif
~ Pete
danachevroletfor1967
03-02-2017, 05:10 PM
Updates on Holly are always appreciated. Prayers and good wishes to her and her family and the donor and their family too.
427freak
03-03-2017, 03:57 PM
This is Great. Holly is one Brave/Strong woman. Your whole family deserves these victories!!
x77-69z28
03-12-2017, 04:52 PM
This thread gives me goosebumps every time I check it!!!
Buddy
Xplantdad
03-12-2017, 05:06 PM
Thanks guys! Dana-I sent you a message on Facebook :)
Xplantdad
04-26-2017, 11:38 PM
We just got back from the 4 month after transplant clinic visit (almost to the day). The doctor said that the kidney is doing great, no signs of rejection on the biopsy taken on Monday and her creatinine level is wonderful @1.1, too!
We see the doctors in about a month...and the blood tests are every other week now, too! Thanks to God, the donor for their wonderful gift and to our friends for their great support.
We will take it day by day and enjoy each day! Way to go Holly (and Alejandro!)
:youguysrock:
BJCHEV396
04-26-2017, 11:56 PM
Glad to hear the good news Bruce!!!
Ryan1969Chevelle
04-27-2017, 12:27 AM
So happy for this wonderful outcome!!!
Prayers for continued awesome results.
Ryan
travlnz28
04-27-2017, 12:33 AM
Great news. Way to go Holly!
earntaz
04-27-2017, 12:47 AM
We just got back from the 4 month after transplant clinic visit (almost to the day). The doctor said that the kidney is doing great, no signs of rejection on the biopsy taken on Monday and her creatinine level is wonderful @1.1, too!
We see the doctors in about a month...and the blood tests are every other week now, too! Thanks to God, the donor for their wonderful gift and to our friends for their great support.
We will take it day by day and enjoy each day! Way to go Holly (and Alejandro!)
:youguysrock:
All it takes is the good Lord, good doctors, good family and good friends ... Craig ...
m22mike
04-27-2017, 01:23 AM
Awesome....:HollyRocks:
PeteLeathersac
04-27-2017, 01:51 AM
'
Best news of the day!!
:HollyRocks:
~ Pete
.
Postsedan
04-27-2017, 01:58 AM
'
Best news of the day!!
:HollyRocks:
~ Pete
.
X100,000.00
:HollyRocks:
Dan
L78M22Rag
04-27-2017, 04:27 AM
Great news! This is such a good thread... thanks for all the updates.
Tenney
04-27-2017, 04:45 AM
Hey cool!!
mssl72
04-27-2017, 06:24 AM
That's fantastic news!!
bergy
04-27-2017, 10:42 AM
WONDERFUL!!! Great blessing!
.... That's Great news ....
:HollyRocks:
:HollyRocks:
:HollyRocks:
Great news Bruce!!
Phil Woj.
NorCam
04-27-2017, 12:33 PM
Great news Bruce. :HollyRocks:
ZAPPER68
04-27-2017, 03:45 PM
Excellent...great news, thanks for the updates.
danachevroletfor1967
04-27-2017, 05:56 PM
Great news. Always nice to get an update on Holly. Hope she continues to improve.
mockingbird812
04-27-2017, 08:01 PM
Woohoo! Just wonderful!!!!!
bbbenny
04-27-2017, 08:49 PM
Bruce, It;s time to start planning for the trip to the east coast. The offer still stands!!! BBBenny
tjs44
04-27-2017, 09:23 PM
OK Bruce!You deserve a road trip!Seal Beach this sat!Tom
scuncio
04-29-2017, 12:50 PM
Great news!
Xplantdad
04-29-2017, 01:55 PM
Thanks Everyone...we are really happy. And in honor of April being donate life month....
Here is a video of a bunch of the Loma Linda Heart transplant kids (Holly is in there a few times-along with her buddy Adam(who passed away at 19 years old) and his mom). Enjoy...!
https://www.youtube.com/watch?v=XgQNdIXWmqw&feature=share
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